Before you turn out the light do you notice your shadow? Do you consider the luxury of design, era, and technology? Or, do we take for granted the simplest attributes of what we know to be life? To think, one hundred and fifty years ago a light bulb, a light switch, would be crazy-talk, in the realm of science fiction.
It is my disposition to speak of something some would consider science fiction. Allow me to introduce my nephew Billy. He has been diagnosed with Friedreich’s Ataxia. This term may be new to you as it was for me and my family not too long ago. Billy is six and fueled by love. To be honest, I don’t know how? I do know, he was born to be something great!
Anyone in his presence can attest his light is blinding, you can’t just flip a switch. At six he struggles in areas I can’t imagine. If I could trade him places I would. His laugh is contagious, his eyes are the brightest blue, but a sadness can be seen . . . that which I can not speak of; a sadness that brings one to tears. The Doctors have diagnosed him with cardiomyopathy, and scoliosis, and all too soon will be bound to a wheelchair. Not to mention, might not live past twenty. Sure, medication may prolong his life. But he will never play soccer, football, or baseball, that much is certain. I don’t know about you, but some of my fondest memories are from my childhood and adolescent years. It pains me to think of the hardships that he will be facing in the not so distant future.
But hold the eminent-pending-doom, there is hope on the distant horizon! It’s a long shot, in the realm of science fiction. A CURE! If your child were born with Friedreich’s Ataxia would you want an answer to your prayers? If nothing else, help answer Billy’s: “God please heal my legs, and my brother Donovan’s legs. Make him walk. Please help the poor animals and the poor people and have people feed them as they walk by.”
I subscribe to the theory we are as strong as we strive to be. Billy will be great!
To help Billy and others like him visit: http://www.curefa.org